Development of a Web-Based Curriculum for Medical Students Addressing the Ethical, Legal, and Social Implications of Genetics
Capstone Project Committee: Nancy Callanan, MS, CGC, Maripat Metcalf, Brad Tanner
National Human Genome Research Institute (NHGRI) and the National Coalition for Health Professional Education in Genetics (NCHPEG) have communicated a great need for the education of physicians about the ethical, legal, and social implications (ELSI) of genetic testing and counseling. I partnered with Clinical Tools, Inc. (CTI), an established provider of online medical education, to create educational modules addressing ELSI in genetics. I served as the primary author of a module addressing prenatal carrier screening and diagnostic testing issues. After undergoing revisions based on expert consultation, the prenatal module was administered to medical students across the United States. Initial evaluation of the prenatal module (n = 318) concluded that it met the course objectives and increased medical students’ knowledge regarding prenatal issues. Additionally, medical students reported that they were satisfied with the course and intended to apply the information gained when addressing prenatal ELSI with patients. From this capstone experience, I learned how to maintain productive communication with a team, the basics of HTML computer programming, and how to employ adult learning theories to develop case based instruction. Additionally, I gained a greater understanding of prenatal testing and associated ELSI.
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